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Friedreich's Ataxia is a recessively inherited disease; meaning a person develops the disorder only when he or she inherits genes from both parents. About 1 in 90 people of European ancestry carry the FRDA gene and most of them do not know it. There is a higher incidence of FRDA in the French/Acadian population of south Louisiana. In 1996, an international group of scientists -- with cooperation and support from patients, patient families and their physicians --identified the gene, cloned it, and decoded its sequence. The gene (called X25) was found on the 9th chromosome and carries the instructions for making a protein that was not previously known. The protein was named after the disorder and is called frataxin.

   
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The Nicholas Woods Friedreichs Ataxia Foundation
2588 F El Camino Real, #250
Carlsbad, CA 92008
Office: 866-524-2369
Fax: 858-541-7061
We are a 501(c)3 Non Profit Corporation and Tax ID # 02-0537430